Tag: Invisible Disability
Chronic Pain Pillows: Your Ultimate Guide to Every Type
Chronic pain pillows that quickly reduce your pain while helping you sleep Chronic pain pillows are a crucial part of life when it comes to managing the pain of an illness, injury, chronic condition or disability. It’s hard to overstate the effect that the right combo of pillows can have: not just on easing your…
Top 7 Gifts To Make Chronic Pain Easier
Gifts to make life with chronic pain easier, more productive, and less painful Finding the perfect gift for someone with chronic pain requires understanding both their daily challenges and their desire for independence. This curated guide highlights seven categories of gifts that genuinely improve quality of life: pillows, stretching tools, massage tools, heat and cold…
“Renegades”: The PBS Show About Historical Figures With Disabilities You Need to See
I interviewed the host & crew of PBS’s Renegades, about lesser-known historical figures with disabilities. Finally, a show that doesn’t just tokenize disability but centers it, celebrates it, & demands that we recognize it as integral to our history!
Can you see pain?
Different ways to see pain, even when your condition is invisible Can you see pain? It’s a tricky question! Pain is such a complex and subjective experience, and the word “pain” covers a whole host of very different experiences. It gets even more complicated when you’re talking about chronic pain or illness. It’s not like…
The Best Type of Heat To Help You Feel Better
Types of heat & how each helps pain differently Living with chronic pain can feel like an endless battle, but sometimes, the simplest solutions can offer the most profound relief. Heat therapy may be a time-honored tradition in pain management, but your options have evolved far beyond the humble hot water bottle. Let’s look at…
Migraine Relief W/o Meds: A Huge List of Stuff to Help Your Headache
The ultimate guide to stuff that might make migraines more manageable Stuff to help your migraine… that you can get over the counter?! Yeeeah, seems like a “I’ll believe it when I see(/feel) it” situation. For my entire life I’ve dealt with migraine disease, tension headaches, and sinus headaches so bad I had one surgery…
Exactly what to say to your doctor to get refills on the meds you need
Urgent med refill? Learn how to effectively communicate with your doctor and pharmacy, track prescriptions, and get quick refills. Includes printable script!
For National Mental Health Month, 6 beautiful poems about mental health & chronic pain– & despite them!
Chronic pain & mental health poems that are wise, not sappy Poems about mental health, chronic pain or other invisible disabilities, just like quotes on the subject, tend to be sappy as hell (except those quote pages I put together, of course). And that is extremely not my jam. But something doesn’t have to be…
Is your room causing your insomnia? W/ a free printable to find out!
Using your five senses to figure out if your room is causing your sleeplessness If you’re someone who beds down at night only to stare at the wall, have you ever considered whether your room could be contributing to your insomnia? Not being able to sleep sucks, and the combo of chronic pain and insomnia…
Navigating Relationships with Chronic Pain with Unity & Partnership
Despite whatever conditions are in play, there are ways to find and build a healthy romantic partnership where you thrive as a team. Here’s how! Building a healthy relationship despite chronic pain is a complex dance, one that requires grace, patience, and of course love. Whether it’s you or your partner who’s in this continuous…
10 Quotes About Chronic Pain & Joy to Motivate Your New Year & Beyond
Inspirational quotes about chronic pain that actually resonate with what we’re going through can be hard as hell to find. Living with constant pain or chronic illness is a tough slog, rougher than “able-bodied” people can ever know. Finding the joy in a life filled with pain is more difficult for us, but it’s also…
Surprise friends w/ The Most Useful Gifts For People With Fibromyalgia This Holiday Season
Gifts for people with fibromyalgia that truly help make life easier Gifts for people with fibromyalgia aren’t hard to come up with: you just have to put yourself in their shoes. (Hopefully, cute ones.) Though fibro is an invisible disability, that doesn’t make its effects, like chronic widespread pain, fatigue, sleep issues, and sensitivity to…
Quotes About Self Care (& Self Care Quotes About Invisible Illness)
Quotes about self-care, especially self-care quotes about invisible illness, are hard to come by. Well, good ones at least– you can find sappy schlock everywhere. But there are also gems, little bits of wisdom that remind me to take time for myself, helping me through the chronic pain of my invisible illnesses. Click one in…
New Generations, Old Genes: A Guide to Family Planning with Genetic Disorders
Before starting a family, make sure you understand your genetic situation and how it can affect pregnancy and your prospective child. Family planning can be an exciting and emotional time for any couple. However, if you have a genetic disorder, finding your soulmate isn’t enough: there are other questions to consider. From talking to your…
Best Inspiring Quotes About Invisible Illness
Quotes about invisible illness, chronic pain, and disability pride to inspire us all Quotes about invisible illness are too often filled with sappy, inspirational cliches. But that doesn’t change the need that people with chronic pain and invisible disabilities have for guidance, understanding and truth. In the two decades that I’ve been in pain, I’ve…
Chronic pain & trouble sleeping: sleep routines may cure your insomnia
A sleep routine (aka “sleep hygiene): if you have chronic pain, anxiety, ADHD and insomnia (or any combo thereof), like I do, this simple process might just be the “cure” for insomnia you’ve been seeking. “Sleep hygiene” is the process of creating an environment that can help you fall asleep and stay asleep. Here are…
How To: Dating With Chronic Pain or Dating With Invisible Disabilities
Dating with chronic pain is tough, especially if there’s nothing visible about your condition. Finding someone using dating dating apps like Hinge or Tinder is hard to begin with, but dating with a disability, especially invisible illnesses, adds a whole other level of difficulty. In some ways using those apps would be easier if I…
Best Quotes About Chronic Pain, Disability, & Mental Health
A lot of “inspirational’ quotes about chronic pain & mental health are too sweet or sappy to be helpful for me. I’ll keep updating as I find more quotes that are encouraging without being… too much. (I promise, no “live laugh love” posters.)
Top 15 Chronic Pain Gifts To Help Patients Around the House
These are the top 15 around-the-house gifts for chronic pain patients that they’ll appreciate long after the holidays have passed.
Keeping a medical log-with free printable & spreadsheet!
This free printable medical log tracking calls to doctors is the quickest and easiest way of staying on top of contact with your medical team, especially for patients with chronic pain or complex health conditions. Read on to learn why you should use one, download a free printable medical log, and learn how to customize…
Top Qs about Invisible Illnesses & Disability Pride Month
Invisible illnesses are tough: you never quite know where you belong. Since July is Disability Pride Month, here are answers to the top questions people with invisible illnesses ask about disability.
Gift Guide For Chronic Pain, Part 1 — UPDATED!
This story was most recently updated on 11/1/2024. Christmas is coming, and that’s got me thinking about all the little gadgets I continually recommend to my friends. Some of this stuff took me 20 years to learn about (Theracane, where were you all my life?!) and some are old standbys that can help a surprising…
Pain Scales (1-10): How To Explain Your Pain
1-10 Pain scales have real limitations: keep the bigger picture in mind when using a 1-10 scale to measure your pain.
Chronic Pain, Weight, & The Challenge of Getting Through The Damn Day
Stuff like anger, stuff like weight gain, stuff like frustration, stuff like anxiety– it’s all tied in together. And none of it lends itself to a 1-10 pain scale.