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Janet Jay

pain: chronic / words: iconic

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Invisible illnesses & Invisible Disabilities Archives

Invisible illnesses & invisible disabilities can be enormously difficult to deal with. Not only are you  hurting, but you’re hurting in a way that no-one can see. Especially if you’re like me, and they can’t find something concrete on a scan, you start living in this no-man’s-land of trying to convince the world that your pain is real. You know your body better than anyone, and you know when something is wrong. But it can be a massive struggle to go from doctor to doctor, hearing “huh well i don’t see anything in my field, you should go see specialist #27!” It’s even worse when you’re told it’s all in your head, or worse, that you’re making it up for some nefarious reason. After doing this for 20 years, I’ve got some tips, tricks and advice for you living with invisible illnesses or disabilities.

Chronic Pain & DisabilityHow ToInvisible illnesses & Invisible Disabilities ArchivesLife with chronic painMental healthPersonal experienceRecommendations

How To: Dating With Chronic Pain or Dating With Invisible Disabilities

by Janet Jay February 12, 2023
written by Janet Jay
On a background of red and black hearts, image of two phones side by side illustrating dating, the left with a man and a heart and the right a woman with two smiley faces, looking towards each other. Text reads "dating with chronic pain and invisible disabilities, janetjay.com"
On a background of red and black hearts, image of two phones side by side illustrating dating, the left with a man and a heart and the right a woman with two smiley faces, looking towards each other. Text reads "dating with chronic pain and invisible disabilities, janetjay.com"

Dating with chronic pain is tough, especially if there’s nothing visible about your condition. Finding someone using dating dating apps like Hinge or Tinder is hard to begin with, but dating with invisible disabilities adds a whole other level of difficulty.

In some ways using those apps would be easier if I was visibly disabled and used a wheelchair or crutches. It would at least be simpler than trying to put together a profile when I’m dating with chronic pain and dating with invisible disabilities like fibromyalgia, migraine disease, back pain, joint pain, nerve pain, and mental health issues (that’s what I’m dealing with)! But it also applies to a wide range of other issues like EDS, POTS, arthritis, Crohn’s, lupus, other autoimmune disorders, and/or any disability where you look like everyone else.

Most of the time you wouldn’t know I’m in pain, even though I always am. But it hugely affects my life, and it’s important that anybody I have as a partner be aware of it and OK with it. No, actually, it’s important that anybody I have as a partner be supportive, empathetic and caring about it.

But how do you find that person through the hellscape that is modern dating apps? If you’re dating with chronic pain or dating with invisible disabilities, consider the following before writing your profile.

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February 12, 2023 6 comments
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Chronic Pain & DisabilityInvisible illnesses & Invisible Disabilities ArchivesLife with chronic painMental healthPersonal experienceQuestions About

Top Qs about Invisible Illnesses & Disability Pride Month

by Janet Jay July 30, 2022
written by Janet Jay
On a teal background with red shapes and a picture of two men holding a banner that reads "disability pride lead on!" Headline reads "Invisible illnesses and disability pride month: your top questions answered,janetjay .com. Photo from 2017 Disability Pride Parade and Resource Fair and the National Constitution Center and Dilworth Plaza, on Saturday, June 17, 2017. Taken by Bill. Z. Foster https://flic.kr/p/VKTGTm
On a teal background with red shapes and a picture of two men holding a banner that reads "disability pride lead on!" Headline reads "Invisible illnesses and disability pride month: your top questions answered,janetjay .com. Photo from 2017 Disability Pride Parade and Resource Fair and the National Constitution Center and Dilworth Plaza, on Saturday, June 17, 2017. Taken by Bill. Z. Foster https://flic.kr/p/VKTGTm

Invisible illnesses are tough for a lot of reasons, one of which is never quite knowing where you belong. Too many people hear “disabled” and all that comes to mind is someone in a wheelchair who is paralyzed or has a visible disease that means they’re never going to walk again. It never occurs to them that 20% of the country, 50 million Americans, have some form of chronic pain, or that invisible disabilities such as CRPS, fibromyalgia and migraine disease make up a large portion of that number. It just never crosses their minds that someone in a wheelchair may well be able to stand up and walk around, looking completely ‘normal,’ but still truly need that chair!

July is Disability Pride Month, but those of us with less visible issues can sometimes be hesitant to participate, unsure if we should use the “disabled” label or if it’s really our place. Scroll down for answers to some of the top questions people with invisible illnesses ask about disability pride, disability rights, and disability as a whole.

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July 30, 2022 1 comment
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About Me

About Me

Janet Jay

Here's a lil TL;DR summary of my history with chronic pain & disability, and this is what I've gotten up to otherwise.

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Recent Posts

  • How To: Dating With Chronic Pain or Dating With Invisible Disabilities

    February 12, 2023
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  • What Star Trek Got Wrong about Geordi’s Disabilities

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  • Top Qs about Invisible Illnesses & Disability Pride Month

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